I know you’ve felt like crap for months – maybe even years. You’ve probably shuffled from doctor-to-doctor, trying to figure out why you’re in pain all the time and can barely pull yourself out of bed. You may even be relieved that you finally have a diagnosis. I know I was when I was diagnosed in 2014.
But looking back at my own fibromyalgia journey, one quote comes to mind again and again: I wish I knew then what I know now. So, today I’m sharing what I wish someone had told me when I was first diagnosed. I hope it lessens someone else’s struggle.
My first advice to anyone newly diagnosed with fibromyalgia is to question your diagnosis. Fibro is a diagnosis of exclusion, meaning all other possible medical conditions have to be ruled out by your physician. Are you sure he or she did that?
Too often physicians label someone with fibromyalgia because it’s the path of least resistance. They don’t know what’s wrong with you, and nothing obvious is showing up on your lab work, so it must be fibromyalgia, right?
But I would encourage you not to blindly accept your diagnosis. Here’s why: A Canadian study found that up to two-thirds of fibromyalgia patients have been misdiagnosed.
The implications of that are huge. That means millions of fibromyalgia sufferers are living with undiagnosed conditions, some of which are probably treatable!